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HOPE FOR MARIAN

A MOM'S JOURNEY TO FIGHT FOR HER DAUGHTER'S LIFE...AND SOME NORMAL STUFF TOO

Sandy Beach

September 28, 2017

August 26, 2017

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Recent Posts

July 29, 2017

Marian is the youngest patient in the world that we know of to be receiving this treatment via IT (spinal fluid). Another title holder is our friend Parker who is only six months old and just started it but through an IV to target his liver. Spain allows compassionate...

May 24, 2017

 These two have been friends since birth and are two of four members of our "baby play group" (comprised of four four year olds, four baby siblings, and four incredible, life saving, moms). Paul took Emily to the Santa Monica Pier and Aquarium Sunday for a birthday par...

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