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HOPE FOR MARIAN

A MOM'S JOURNEY TO FIGHT FOR HER DAUGHTER'S LIFE...AND SOME NORMAL STUFF TOO

Sandy Beach

September 28, 2017

August 26, 2017

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Recent Posts

June 22, 2017

She's so small. That was my first thought when I first saw Marian, like a miniature porcelain doll.   

At Marian's early well baby visits her weight gain left something to be desired. It took her several weeks to hit 7 pounds and at Thanksgiving, when she...

March 27, 2017

Some adorable and dearly loved friends, not from The Hunger Games.

The title of this post is from The Hunger Games, I read all three books and saw three of the four movies. You have to draw the line somewhere and I just could not see the last movie. Phillip Seymour Hoff...

March 19, 2017

Yesterday we got some great news. Marian has an appointment April 7 with an NPC expert in Chicago who has accepted her as a patient, given her a rush appointment, AND can begin administering the treatment if it's not ready in California yet. Our local hospital is hard...

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